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My name is Christine Hodgdon and at the age of 34, I was diagnosed with de novo stage IV metastatic breast cancer (MBC). I endured all my treatments, which resulted in a complete response, and I currently have no evidence of disease (NED) in my body. Even though I have NED, I am still a stage IV patient and always will be. I can never be “upgraded” to stage 1, 2, or 3 or even say that I’m in remission; I am merely “stable” for now. Every 6 months I am scanned to monitor any progression of my disease. I will be on treatment for life with monthly targeted therapy infusions every 3 weeks, as well as hormone therapy, to manage my MBC. You can read more about my story HERE.

Two years after my diagnosis, I wanted to get more involved in the MBC community and I decided to participate in a 2-day advocacy event on Capitol Hill in Washington DC with the organization, Metavivor. I had the opportunity to meet with my State senators and local representatives to express my support of increasing the NIH budget specifically to fund research on metastatic cancer.

A month later I attended a training to become a Hear My Voice (HMV) volunteer with the organization, Living Beyond Breast Cancer (LBBC) in Philadelphia. The HMV program helps MBC patients become advocates in their local and digital communities. I then attended the LBBC’s conference specifically for MBC patients and I was instantly connected to hundreds of survivors, patients, and advocates.

See my full resume below:

Research Advocacy Initiatives FoundedAwards & Honors • Professional Memberships & CommitteesConferences & WorkshopsResearch & Advocacy TrainingsContributions to Research AdvocacyBreast Cancer Support • Media & Press Contributions • Clinical Trials Participant

Research Advocacy Initiatives Founded

GRASP – Guiding Researchers & Advocates to Scientific Partnerships

INSPIRE (Influencing Science through Patient-Informed Research & Education) Advocacy Program at Johns Hopkins
Founding member

Breast Cancer Brain Metastasis Initiative: The Marina Kaplan Project
Founding member & Project lead

Patient-Centered Dosing Initiative (#TheRightDose)
Founding member (no longer an active member)

Metastatic Trial Talk
Clinical Trials Consultant

Storm Riders Network

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Awards & Honors

Beth Caldwell Breakthrough Leadership & Advocacy Award
Received at 2019 Susan G. Komen® Northwest Metastatic Breast Cancer Conference

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Professional Memberships & Committees

Diversity & Inclusion Pledge for Black Women (#InclusionPledge)
Founding member

Pfizer’s Global Virtual Advisory Board
Patient advocate member providing insights post ASCO, ESMO, & SABCS conferences

Johns Hopkins Sidney Kimmel Comprehensive Cancer Center’s “Breast Cancer in Young Women” program
Scientific advisory board member

Metastatic Breast Cancer Alliance (MBCA)
Individual member & former co-chair of the Patient/Advocate Advisory Group (2019)

NCI/NIH Cancer MoonshotSMprogram, Improving the Management of symPtoms during And following Cancer Treatment (IMPACT)                        
Steering committee patient representative

Theresa’s Research Foundation
Planning committee member

Susan G. Komen® Advocates in Science (AIS) 
Komen Scholar & former steering committee member

U.S. Food and Drug Administration (FDA)
Patient representative 

Roche Pharmaceuticals
Patient representative to improve personalized medical delivery support to patients

Lilly Oncology
Patient advocate ambassador & advisor

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Scientific Conferences & Workshops

Accelerating Anti-cancer Agent Development & Validation (AAADV) Workshop
Travel scholarship recipient (2019) & panelist (2020)

American Society of Clinical Oncology® (ASCO) Annual Meeting
Attended 2019 & 2020 (Inaugural GRASP launch)

Living Beyond Breast Cancer Conference on Metastatic Breast Cancer
Attended 2017 (Hear My Voice participant), 2018, 2019, 2020 (Panelist)

2020 37th Annual Miami Breast Cancer Conference®
Travel scholarship recipient via Living Beyond Breast Cancer

2020 Susan G. Komen® Northeast Ohio MBC Conference
Invited speaker

2019 San Antonio Breast Cancer Symposium (SABCS)
Attended 2017, 2018, 2019 (Inaugural GRASP launch)

Tigerlily Foundation’s 2019 Young Women’s Metastatic Breast Cancer Disparities Fireside Chat

2019 Advanced Breast Cancer International Consensus Conference (ABC5) in Lisbon, Portugal
Travel scholarship recipient

2019 Lynn Sage Breast Cancer Symposium 
Patient advocate mentor for the Komen® Advocates in Science (AIS) Program

2019 Theresa’s Research Foundation Annual Metastatic Breast Cancer Conference (#6thMBCC)
Steering & planning committee member

Susan G. Komen® Puget Sound – Northwest Metastatic Breast Cancer Conference (#NWMetsConf)
Speaker & planning committee member  

2019 Society for Neuro-Oncology (SNO) Inaugural Brain Metastases Conference
Travel scholarship recipient                                                                     

Metastasis Research Society (MRS) & METAvivor MBC Engagement Conference
Travel scholarship recipient (2018, 2019)

2019 AACR Annual Meeting 
Scientist↔Survivor Program participant

YSC Summit | For Young Women with Cancer
Attended 2018 (Travel scholarship recipient) & 2019 (MBC Alliance travel grant recipient)

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Research Advocacy Trainings

Advocates in Science (AIS)
Susan G. Komen®

2019 Cancer Policy & Advocacy Team (CPAT)
National Coalition for Cancer Survivorship (NCCS)                                      

2019 Scientist↔Survivor Program
American Association for Cancer Research® (AACR)

2018 Alamo Scholarship Recipient for San Antonio Breast Cancer Symposium
Alamo Breast Cancer Foundation (ABCF)

2017 & 2018 Capitol Hill Stage IV Stampede

2018 Project LEAD® Institute
National Breast Cancer Coalition

Understanding Evidence-based Healthcare: A Foundation for Action Online Course
The Cochrane Collaboration

2017 Hear My Voice Advocacy Program
Living Beyond Breast Cancer

2017 Capitol Hill 2-Day Advocacy Event to House & Senate

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Contributions to Research Advocacy

Vanderbilt Medical Center
Research advocate for Dr. Ben Ho Park, M.D.

Metastatic Breast Cancer Alliance
Research Task Force member

Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins University School of Medicine
Research advocate for Dr. Cesar A. Santa-Maria, M.D. MSCI (Ongoing), Dr. Vered Stearns, M.D. (Ongoing), & Dr. Saraswati Sukumar, Ph.D. (2019)

Grant reviewer for the 2-year $200,000 MBC Research Award (2018), 1-year $50,000 MBC Early Career Investigator Award (June 2019), & 3-year $500,000 Founders Award (Sept 2019)

Department of Defense (DOD) Breast Cancer Research Program (BCRP)
2019 & 2020 Consumer Reviewer

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Breast Cancer Support

Breast Cancer Helpline Volunteer
Living Beyond Breast Cancer

SurvivorLink Peer Mentoring Program
Young Survival Coalition

Mindfulness-Based Cancer Recovery: Guided Meditations
Life with Cancer Center

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Media & Press Contributions

GRASP Connects Advocates & Experts at 2020 ASCO Annual Meeting
Living Beyond Breast Cancer – June 2020

Clinical Trials for Metastatic Breast Cancer
Susan G. Komen® Northeast Ohio’s Metastatic Breast Cancer Conference – June 2020

Patient Advocates Play Pivotal Role at ASCO2020
Patient Power – May 2020

Changemakers: Grasping Science Together
Wildfire Magazine – Feb/March 2020

Video Series: #MoreForMBC campaign
Live Social Media Tour: San Antonio Living (NBC) & PALive! (NBC; Wilkes-Barre, PA)
Press Release: Lilly, Anna Kaiser Launch ‘30-Day Thriver Challenge’ to Increase Awareness of Daily Stress of Living with Metastatic Breast Cancer, Elevate Support for Women & Men Living with the Disease
Eli Lilly & Company – Jan 2020

Cancer Patient Advocates Find Strength in Numbers
Cancer Today – Dec 2019

Interview for the GRASP pilot program
San Antonio Breast Cancer Symposium (SABCS) – Dec 2019

Press Release: Tigerlily Foundation Hosts Historic Young Women’s Metastatic Breast Cancer Disparities Fireside Chat at the San Antonio Breast Cancer Symposium
Tigerlily Foundation – Dec 2019

 Cancer Policy Monitor Guest Post: Early Career Scientists Partner with Patients
American Association for Cancer Research® (AACR) – Dec 2019

Podcast: Sharing Knowledge – Pairing Experts With Patient Advocates
Breastcancer.org – Nov 2019

Audio (Clip 1, Clip 2, & Clip 3) for #EverydayForMBC campaign
Seattle Genetics – Nov 2019

Honoring A Friendship Bound by a Metastatic Breast Cancer Diagnosis
Susan G. Komen® – Oct 2019

Interview with Dr. Timothy Pluard of St. Lukes Koontz Center for Advanced Breast Cancer
Theresa’s Research Foundation – Sept 2019

Podcast: The Worst Club with the Best People, with Julia Maues and Christine Hodgdon
The Intersection of Cancer and Life with Emily Garnett – Aug 2019

Advocacy at ASCO: Furthering Education Video
Living Beyond Breast Cancer – Aug 22, 2019             

Metastatic Breast Cancer: The Advice I Needed Most
Health Central – July 17, 2019

Op-Ed: Senate bill would curb medical innovation in Maryland, hurting cancer patients
Capital Gazette – March 22, 2019

Health Monitor’s Guide to Metastatic Breast Cancer
American Cancer Society – Feb 2019

Lilly & Metastatic Breast Cancer Advocates Launch Thriver Movement to Elevate Understanding of the Daily Impact of the Disease, Encourage Public to do #MoreforMBC
Eli Lilly & Company – Oct 12, 2018

This Yoga Pose Raised $225K for Metastatic Breast Cancer. Here’s How You Can Help, Too
Yoga Journal – Nov 29, 2019

Blog post for #ItsAboutTimeMBC campaign
It’s About Time – Oct 2018

What’s Next & Other Things Metastatic Patients Want to Know
Cure® Magazine – Feb 2018

Interview for MY LIFE Podcast
Tigerlily Foundation – Feb 2018

Listen to Your Body: Staying Physically Active After a Metastatic Breast Cancer Diagnosis
Living Beyond Breast Cancer – Dec 2018

Role with the Punches
Tigerlily Foundation – Dec 2017

Know Stage IV: Cancer Creates a Shifting Sense of Self
Living Beyond Breast Cancer – Oct 2017 

Picture submission for #InSixWords campaign
The Underbelly – Sept 30, 2017

Article submission for summer newsletter
Twisted Pink – Summer 2017

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Clinical Trials Participant

Long-term Metastatic Cancer Survivor Survey
University of Wisconsin, Carbone Cancer Center- Madison, WI

Four Conversations Study
Duke Cancer Center- Durham, NC

Metastatic Breast Cancer Project
Broad Institute- Cambridge, MA

University of South Florida, Aetna, & Facing Our Risk of Cancer Empowered (FORCE)

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