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My name is Christine Hodgdon and at the age of 34, I was diagnosed with de novo stage IV metastatic breast cancer (MBC). I endured all my treatments, which resulted in a complete response, and I currently have no evidence of active disease (NEAD) in my body. Even though I have NEAD, I am still a stage IV patient and always will be. I can never be “upgraded” to stage 1, 2, or 3 or even say that I’m in remission; I am merely “stable” for now. Every 6 months I am scanned to monitor any progression of my disease. I will be on treatment for life with monthly targeted therapy infusions every 3 weeks, as well as hormone therapy, to manage my MBC. You can read more about my story HERE.

Two years after my diagnosis, I wanted to get more involved in the MBC community and I decided to participate in a 2-day advocacy event on Capitol Hill in Washington DC with the organization, Metavivor. I had the opportunity to meet with my State senators and local representatives to express my support of increasing the NIH budget specifically to fund research on metastatic cancer.

A month later I attended a training to become a Hear My Voice (HMV) volunteer with the organization, Living Beyond Breast Cancer (LBBC) in Philadelphia. The HMV program helps MBC patients become advocates in their local and digital communities. I then attended the LBBC’s conference specifically for MBC patients and I was instantly connected to hundreds of survivors, patients, and advocates.

See my full resume below:
Advocacy Trainings & Events  •  Breast Cancer Grant Reviews  •  Breast Cancer Support
Breast Cancer Conferences  •  Awareness Campaign Contributions  •  Clinical Trials Participant

Advocacy Trainings & Events:

2018 Project LEAD® Institute Graduate
July 2018
National Breast Cancer Coalition- La Jolla, CA

Understanding Evidence-based Healthcare: A Foundation for Action Online Course
July 2018
The Cochrane Collaboration 

ANGEL Advocacy Program
Nov 2017
Tigerlily Foundation- Washington, DC

Capitol Hill Stage IV Stampede Advocacy Event
Oct 2017 & 2018
METAvivor- Washington, DC

Hear My Voice Outreach Program
April 27-30, 2017
Living Beyond Breast Cancer- Philadelphia, PA

Die-in Protest
Oct 13, 2017; April 29, 2017
MET UP- Washington, DC; Philadephia, PA

Capitol Hill 2-Day Advocacy Event to House & Senate
April 4-5, 2017
METAvivor- Washington, DC

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Breast Cancer Grant Reviews:

Consumer Reviewer for the Breast Cancer Research Program (BCRP)  
Fiscal Year 2019
Department of Defense (DOD)- Washington, DC

Grant Reviewer for 2-Year $200,000 MBC Research Award
Aug-Sept 2018
METAvivor- Annapolis, MD

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Breast Cancer Support:

Clinical Trials Consultant
Storm Riders Network- Baltimore, MD

Breast Cancer Helpline Volunteer
Living Beyond Breast Cancer- Philadelphia, PA

SurvivorLink Peer Mentoring Program
April 2017
Young Survival Coalition- New York, NY

Mindfulness-Based Cancer Recovery: Guided Meditations
Aug 2016 – Jan 2017
Life with Cancer Center- Fairfax, VA

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Breast Cancer Conferences

San Antonio Breast Cancer Symposium
Dec 2017 & 2018
UT Health Science Center San Antonio; American Association for Cancer Research (AACR)- San Antonio, TX

MBC Engagement Conference (Travel Scholarship Recipient)
June 22-23, 2018
Metastasis Research Society (MRS) & METAvivor- Tampa, FL

2018 Conference on Metastatic Breast Cancer
April 20-22, 2018
Living Beyond Breast Cancer- Philadelphia, PA

More for MBC Online Community Summit (Travel Scholarship Recipient)
April 19-20, 2018
Lilly Oncology- Philadelphia, PA

YSC Summit | For Young Women with Cancer  
Feb 23-25, 2018
Young Survival Coalition- Orlando, FL

Thriving Together: 2017 Conference on Metastatic Breast Cancer    
April 28-30, 2017
Living Beyond Breast Cancer- Philadelphia, PA

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Awareness Campaign Contributions

Article for #ItsAboutTimeMBC campaign
Oct 2018
It’s About Time

Interview for MY LIFE Podcast
Feb 22, 2018
Tigerlily Foundation- Washington DC

“No More What Ifs” Live Chat Co-Host
Dec 2017

Interview for “Insights on Metastatic Breast Cancer
Dec 2017
Living Beyond Breast CancerPhiladelphia, PA

Blog submission
Dec 2017
Tigerlily Foundation- Washington DC

Article for #KnowStageIV campaign
Oct 2017
Living Beyond Breast Cancer- Philadelphia, PA

Article for #ItsAboutTimeMBC campaign
Oct 2017
It’s About Time

Picture submission for #InSixWords campaign
Sept 30, 2017
The Underbelly

Quote submission for the summer newsletter, “Insights on Metastatic Breast Cancer
Summer 2017
Living Beyond Breast Cancer- Philadelphia, PA

Article submission for 2017 summer newsletter
Summer 2017
Twisted Pink- Louisville, KY

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Clinical Trials Participant

Long-term Metastatic Cancer Survivor Survey
April 8, 2017
University of Wisconsin, Carbone Cancer Center- Madison, WI

Four Conversations Study
May 7, 2017
Duke Cancer Center- Durham, NC

Metastatic Breast Cancer Project
April 2017
Broad Institute- Cambridge, MA

July 2015
University of South Florida, Aetna, & Facing Our Risk of Cancer Empowered (FORCE)

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