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My name is Christine Hodgdon and at the age of 34, I was diagnosed with de novo stage IV metastatic breast cancer (MBC). I endured all my treatments, which resulted in a complete response, and I currently have no evidence of disease (NED) in my body. Even though I have NED, I am still a stage IV patient and always will be. I can never be “upgraded” to stage 1, 2, or 3 or even say that I’m in remission; I am merely “stable” for now. Every 6 months I am scanned to monitor any progression of my disease. I will be on treatment for life with monthly targeted therapy infusions every 3 weeks, as well as hormone therapy, to manage my MBC. You can read more about my story HERE.

Two years after my diagnosis, I wanted to get more involved in the MBC community and I decided to participate in a 2-day advocacy event on Capitol Hill in Washington DC with the organization, Metavivor. I had the opportunity to meet with my State senators and local representatives to express my support of increasing the NIH budget specifically to fund research on metastatic cancer.

A month later I attended a training to become a Hear My Voice (HMV) volunteer with the organization, Living Beyond Breast Cancer (LBBC) in Philadelphia. The HMV program helps MBC patients become advocates in their local and digital communities. I then attended the LBBC’s conference specifically for MBC patients and I was instantly connected to hundreds of survivors, patients, and advocates.

See my full resume below:

Employment & ConsultanciesAwards & Honors • Professional Memberships & CommitteesConferences & WorkshopsResearch & Advocacy TrainingsResearch Grant ReviewsBreast Cancer Support • Media & Press Contributions • Clinical Trials Participant

Employment & Consultancies:

Clinical Trials Consultant for Metastatic Trial Talk
Oct 2018 – Present
Quantum Leap Health Care Collaborative- San Francisco, CA

Founder & Patient Advocate
Oct 2017 – Present
Storm Riders Network– Baltimore, MD

Patient representative & speaker
July – Dec 2019                                                                                        
Roche Pharmaceuticals- San Francisco, CA                                                                                                

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Awards & Honors:

Beth Caldwell Breakthrough Leadership & Advocacy Award recipient
Sept 7, 2019
Presented at the Northwest Metastatic Breast Cancer Conference– Seattle, WA

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Professional Memberships & Committees:

Individual Member 
June 2019 – Present                                                                                                    
National Coalition for Cancer Survivorship- Silver Spring, MD                                                             

Steering & Annual Conference Planning Committee Member  
April 2019 – Present
Theresa’s Research Foundation- Houston, TX                                                                                         

Speaker & Annual Conference Planning Committee Member  
March 2019 – Present
Susan G. Komen® Puget Sound, Northwest Metastatic Breast Cancer Conference- Seattle, WA

Steering Committee Patient Representative for the IMPACT (Improving the Management of symPtoms during And following Cancer Treatment)                        
March 2019 – Present
NCI/NIH Cancer MoonshotSMprogram

Volunteer & Stage IV Stampede Planning Committee   
March 2019 – Present      
METAvivor- Washington, DC             

FDA Patient Representative   
Feb 2019 – Present    
U.S. Food and Drug Administration (FDA)- White Oak, MD

Executive Board Member
Jan – Sept 2019
Beyond Pink Foundation®– Madison, WI

Individual Member & Co-chair of Patient/Advocate Advisory Group (PAAG)
Sept 2018 – Present 
Metastatic Breast Cancer Alliance (MBCA)

Individual Member
April 2018 – Present
Metastasis Research Society                                                                                                                            

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Conferences & Workshops

San Antonio Breast Cancer Symposium
Dec 2017, 2018 (Alamo scholarship recipient), & 2019
UT Health Science Center San Antonio & American Association for Cancer Research® (AACR)- San Antonio, TX

Advanced Breast Cancer International Consensus Conference (ABC5)
Travel scholarship recipient – Nov 16 – 17, 2019
European School of Oncology (ESO) & European Society for Medical Oncology (ESMO)- Lisbon, Portugal

Lynn Sage Breast Cancer Symposium 
Patient advocate mentor for the Komen® Advocates in Science (AIS) Program – Oct 3-6, 2019
Chicago, IL

6thAnnual Metastatic Breast Cancer Conference (#6thMBCC)
Sept 19 – 20, 2019
Theresa’s Research Foundation- Scottsdale, AZ

Northwest Metastatic Breast Cancer Conference (#NWMetsConf)
Sept 7, 2019
Susan G. Komen® Puget Sound- Seattle, WA

Inaugural Brain Metastases Conference
Aug 16-17, 2019
Society For Neuro-Oncology (SNO)- New York, NY                                                                        

MBC Engagement Conference
Travel scholarship recipient – June 2018 & 2019
Metastasis Research Society (MRS) & METAvivor- Tampa, FL & Chapel Hill, NC            

2019 ASCO Annual Meeting
May 31 – June 4, 2019
American Society of Clinical Oncology® (ASCO)- Chicago, IL

Accelerating Anti-cancer Agent Development & Validation (AAADV) Workshop
Travel scholarship recipient – May 7 – 10, 2019
U.S. Food and Drug Administration (FDA)- Bethesda, MD

Conference on Metastatic Breast Cancer
April 2017 (Hear My Voice participant), 2018, 2019
Living Beyond Breast Cancer- Philadelphia, PA

2019 AACR Annual Meeting 
Scientist↔Survivor Program participant – March 30 – April 2, 2019
American Association for Cancer Research®– Atlanta, GA

YSC Summit | For Young Women with Cancer
Feb 2018 & March 2019
Young Survival Coalition- Orlando, FL

More for MBC Online Community Summit 
Travel scholarship recipient – April 19 – 20, 2018
Lilly Oncology- Philadelphia, PA

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Research & Advocacy Trainings:

Capitol Hill Stage IV Stampede Advocacy Event
Oct 2017, 2018, 2019
METAvivor- Washington, DC

Cancer Policy & Advocacy Team (CPAT)
June 25, 2019
National Coalition for Cancer Survivorship (NCCS)- Washington, DC                                                   

Scientist↔Survivor Program Participant at the AACR Annual Meeting
March 30 – April 2, 2019
American Association for Cancer Research® (AACR)- Atlanta, GA

Alamo Scholarship Recipient for San Antonio Breast Cancer Symposium
Dec 2018
Alamo Breast Cancer Foundation- San Antonio, TX

2018 Project LEAD® Institute Graduate
July 2018
National Breast Cancer Coalition- La Jolla, CA

Understanding Evidence-based Healthcare: A Foundation for Action Online Course
July 2018
The Cochrane Collaboration

ANGEL Advocacy Program
Nov 2017
Tigerlily Foundation- Washington, DC

Hear My Voice Outreach Program
April 27 – 30, 2017
Living Beyond Breast Cancer- Philadelphia, PA

Die-in Protest
Oct 13, 2017; April 29, 2017
MET UP- Washington, DC; Philadephia, PA

Capitol Hill 2-Day Advocacy Event to House & Senate
April 4 – 5, 2017
METAvivor- Washington, DC

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Research Grant Reviews:

Research advocate for Dr. Saraswati Sukumar, Ph.D., Dr. Cesar A. Santa-Maria, M.D. MSCI, & Dr. Vered Stearns, M.D.
May 2019 – Present
Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins University School of Medicine 

Advocates in Science (AIS) Program
Feb 2019 – Present
Susan G. Komen®

Grant Reviewer for MBC Research Award (Ranges from 1-3-Years; $50K-$200K)
Aug 2018 – Present
METAvivor- Annapolis, MD

Consumer Reviewer for the Breast Cancer Research Program (BCRP)
Jan 2019 (Fiscal Year 2018)
Department of Defense (DOD)- Washington, DC

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Breast Cancer Support:

Breast Cancer Helpline Volunteer
Ongoing
Living Beyond Breast Cancer- Philadelphia, PA

SurvivorLink Peer Mentoring Program
April 2017
Young Survival Coalition- New York, NY

Mindfulness-Based Cancer Recovery: Guided Meditations
Aug 2016 – Jan 2017
Life with Cancer Center- Fairfax, VA

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Media & Press Contributions

Advocacy at ASCO: Furthering Education Video
Aug 22, 2019
Living Beyond Breast Cancer                   

“Metastatic Breast Cancer: The Advice I Needed Most”
July 17, 2019
Health Central

Op-Ed: “Senate bill would curb medical innovation in Maryland, hurting cancer patients”
March 22, 2019
Capital Gazette

Health Monitor’s “Guide to Metastatic Breast Cancer
Feb 2019
American Cancer Society

“Lilly & Metastatic Breast Cancer Advocates Launch Thriver Movement to Elevate Understanding of the Daily Impact of the Disease, Encourage Public to do #MoreforMBC”
Oct 12, 2018
Eli Lilly & Company

“This Yoga Pose Raised $225K for Metastatic Breast Cancer. Here’s How You Can Help, Too”
Nov 29, 2019
Yoga Journal

Blog post for #ItsAboutTimeMBC campaign
Oct 2018
It’s About Time

“What’s Next & Other Things Metastatic Patients Want to Know”
Feb 2018
Cure® Magazine

Interview for MY LIFE Podcast
Feb 2018
Tigerlily Foundation- Washington DC

“Listen to Your Body: Staying Physically Active After a Metastatic Breast Cancer Diagnosis”
Dec 2018
Living Beyond Breast CancerPhiladelphia, PA

“Role with the Punches”
Dec 2017
Tigerlily Foundation- Washington DC

“Know Stage IV: Cancer Creates a Shifting Sense of Self”
Oct 2017
Living Beyond Breast Cancer- Philadelphia, PA

Picture submission for #InSixWords campaign
Sept 30, 2017
The Underbelly

Article submission for summer newsletter
Summer 2017
Twisted Pink- Louisville, KY

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Clinical Trials Participant

Long-term Metastatic Cancer Survivor Survey
April 8, 2017
University of Wisconsin, Carbone Cancer Center- Madison, WI

Four Conversations Study
May 7, 2017
Duke Cancer Center- Durham, NC

Metastatic Breast Cancer Project
April 2017
Broad Institute- Cambridge, MA

ABOARD Study
July 2015
University of South Florida, Aetna, & Facing Our Risk of Cancer Empowered (FORCE)

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